The shortest version of this- The conclusion of my cardiac catheterization was: I’m good but weird. There are some medication changes to maintain the good part. It took me more time to recover from freaking out than from the actual catheterization.
Yes, I realize this is about the length of one "Disney Day." Also- shut up.
I was feeling good.
Why do my cardiac issue stories always
start like that?
Whenever I go into these tests confident I am on the right track, or get all kinds of health compliments during the
treadmill test, I end up in the Cath Lab.
My organs all showed normal function, my
cholesterol was in the "acceptable" range, and I finally figured out exercise
(slightly shorter but more intense cardio and adding some lifting back in) and diet (returning to “The Joey Falco Diet Plan”) with my over fifty metabolism to get my sugar numbers to start going down, and to keep my weight consistently under 200.
And then there was clomping around
Disney World for a week in May AN AVERAGE OF EIGHT MILES A DAY IN RECORD HEAT AND HIGH HUMIDITY WEARING
AN ISOLATION BOOT with no issues. (Details of the ankle injury that required that are in the Planning Section of the upcoming Disney World story. There are side effects of me obsessing over proofreading my multiple part, writings. Another of many obsessions, Transformers, is also delaying the start of that one.)
Rosa and I were planning a celebratory
dinner on our anniversary at Fogo De Chao, the all you can eat Brazilian
Barbecue, meat fest that Anabelle had been to for work the past two summers,
but we hadn’t enjoyed in over three years.
I had some “routine” Five Years Later tests. (After the age Fifty batch.) The laser in my eye (pew pew) cleared up
some post cataract removal starbursts. The unpleasant package I mailed in instead of getting a full colonoscopy had negative results. On the cardiac side, the blood
work came back good and the early summer echocardiogram and vasculature testing
were normal and healthy as well. Due to my Achilles tendon snapping like the rubber band on
an old action figure in early spring, I had to delay the Nuclear Stress Test
until it was a bit more healed.
(Spoilers- No, it did not delay the aforementioned Disney World clomping.
Also, shut up.)
The test was Friday, October 24, two
days before our anniversary. I went in feeling strong, healthy, and confident. The first scare came for the people running the test. (Spoilers- Mine would be later.) While I was stretching they freaked out that my right calf was very swollen. Once I explained my calves are normally that big and the left had atrophied after the surgery, we all calmed down. Even stopping my blood pressure pills for several days, my heart rate wouldn’t
go above eighty beats per minute through increases in treadmill
speed and incline. Therefore, we had to go to the medication induced stress test again. I referred to it as, “Panic Attack in a Bottle.” They assured me that’s not
what it was. (Spoilers- That is EXACTLY what it was.) My body reacted the way
it needed to, they made me radioactive, and I had the second scan for the evaluation.
(Spoilers- Basically, “We do it that way, because we do it that way.”
Great.)
(Spoilers- I didn’t have to wait that long.)
(Spoilers- AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHH!!!!)
This is when I freaked out. The next few
actions were in highly quick succession but felt like they lasted days.
I called his office and found he had
already notified them to have the scheduling group for procedures contact me.
However, he was doing procedures that day (Spoilers- Hence the “Morristown Medical”
location of the call.) and left no other information for them, other than it was
“just” diagnostic. (Spoilers- It was.) I dialed the number of the missed call
his message came from and miraculously hit the right combination of keys to
reach a human. I explained what happened, and even more miraculously, because
my Cardiologist was between cases, they were able to transfer the call to him.
I told him, in what was likely near
incoherence, about the vanishing voicemail and stated I wanted to hear the information from him
before I panicked. (Spoilers- I didn’t quite make it.) Awesome as always, he
told me not to do that. It was “only” an abnormal reading on the scan of the
nuclear stress test. Based on my other test results, what he saw in that test, and my
activity levels, he felt it was nothing to worry about. However, given my personal and family history the
best action was to check things out and “take some pictures” in the Cath Lab.
He indicated it was “no rush.”
After speaking to him I was much calmer.
As an indication of the state I was in
before I was “much calmer” I ignored his “no rush” statement and called his
office immediately, and for the second time that day, to talk to the scheduling group. I was well acquainted
with my personal and family history he mentioned.
(Spoilers-
Depending on who I am talking to, “Are you nervous about the catheterization?”
has multiple different answers. They are all true. “Especially the lies.”)
The fact that I cleaned leaves in the
yard for over three hours that weekend and was able to keep up my increased
exertion exercise program added to my calm. Not as much as the Doctor’s
speech, but they helped.
I called his office Monday to check if
the paperwork was done.
Fine, I called twice, but it did get me updates by the next day on it even though it was “only diagnostic.” Procedures were done on Tuesdays and Friday mornings. I initially asked for the first Tuesday coming, but that day was reserved for TAVR. (valve replacement) There was no need to be jumping into surgeries my issues aren’t connected with. Therefore, it was set for the following week, November 11th. His office staff was awesome as always and did call me back to confirm the date, stating they didn’t want me to think they forgot about me. He already had a procedure scheduled that day and was getting a time slot special for me. (Spoilers- I was honored.) The “when” of that time wasn’t confirmed yet.
The next two weeks I kept up a confident
front to prevent my family from freaking out, while my risk management experienced
brain ran through every single possible worst case sequence of events.
(Spoilers- There are SO MANY.) Going
harder on the stationary bike, another equally extensive leaf clean up, and several
long walks with Rosa tempered that bit of mental hazard analysis with a dose of
reality.
A week before the procedure was a twenty
minute online class… which, in all honesty, I probably could have taught a chunk of. It was a very nice offering and would have calmed me considerably before my first experience. Having a short video of Doctor Safirstein show up in the middle to explain
that they can now do everything that used to require femoral access through the
radial artery was another confidence bolster. Rosa called in as well and I
texted her, “THAT’S MY GUY!”
The test was scheduled for noon, meaning
we had to get there at Ten AM. I much prefer the medical things that have Six
AM arrival times. I did not need a few extra hours to ponder probabilities.
Check in went smoothly for myself and
the guy there for an ablation. I killed time by explaining that procedure to
Rosa instead of thinking about my own. (Spoilers- For the risk management
minded, distractions are a must.) The attendant, who previously had his own open heart cardiac
procedure, walked us back and maintained the “safe and effective’ conversations
everyone on Morristown’s highly competent and comforting staff used.
Because it’s all radial now, instead of
beds in the waiting and preparation area, there are comfy recliners. I
donned the hospital gown and put on the little sock booties. Hey, design
improvement! The little sock booties have treads on both sides, so they are
easier to don.
While they were starting to prep me, an
intern came by and asked if I could be wheeled in three quarters of an hour
early. Since I wasn’t ready yet, they told him to come back. This whole
encounter was odd, as there was a long space until we saw him again. The nurse
went to check and found out the Cath Lab was running about a half hour behind.
That meant if they did send me with him, I might have been waiting alone in a
hallway somewhere for close to an hour. Because of the patient focus, the hospitals with the most excellent care sometimes slip a little time management wise.
My IV was set up, and they shaved both wrists and hands for the chosen, and back up radial arterial access point. One nurse would get uncontrollable giggles looking at the difference between my smooth wrists and sasquatch like arms every time she came by for a blood pressure reading or to check on something pre or post procedure.
(Spoilers- Yes. Post procedure. Meaning I did survive.)
Then she would apologize and say, “At least it’s cold, you can wear long sleeves.” I didn’t have the heart to tell her I never wear long sleeves. But any source of comedy is worth it.
My initial blood pressure reading was on
the high side.
(Spoilers- “Perhaps I am nervous.”)
Doctor Safirstein came by to add more to my confidence by saying we were
hoping to get in there and, “Do nothing.” (Spoilers- He did.) He said some more comforting things
and went back to his other cases.
With the myriad forms and paperwork (Or is it tabletwork now? I don’t think that word will change.) were
interesting moments. They went over my medication list, which the woman who
ran the training session had called me to review the day before. There were
still corrections needed. Honestly, the “folded paper list in my pocket” method
always works better for that than whatever computer system the healthcare
provider administrative team are using that particular week.
One of the multiple release forms was
the details of the benefit risk analysis for the procedure. While the nurse leaned down to explain what that meant, I whispered, “I’m a writer on the benefit risk procedure
for a multinational company.” She replied, “Wow, I didn’t know that was a job.”
As I read through it, she leaned down again and then it was her turn to whisper, “But you’re
reading the whole thing because it’s you this time.” And I replied well
above a whisper, “You betcha!”
When they were finally ready, my comfy
recliner and I got wheeled to the Cath Lab. We said good bye and Rosa walked to
the outer waiting room. As soon as she was out of sight, I asked the nurse,
“Can I look nervous now?”
As happens in all medical procedures,
efficiency had increased over time. There were only a couple of nurses and/ or
assistants in the lab when I was there, a significant drop from over a decade earlier. Due to the massive reduction in monitor cost, I presume, there was one
enormous screen instead or multiple smaller ones. The down side of that was I
couldn’t see the images. Visually following what was going on was a helpful bit
in keeping me calm and focused on my previous visits. Also, the cardiologist
entered at the same time I did rather than coming in afterwards once it was all set up, likely because preparation time was shorter.
Fine, I called twice, but it did get me updates by the next day on it even though it was “only diagnostic.” Procedures were done on Tuesdays and Friday mornings. I initially asked for the first Tuesday coming, but that day was reserved for TAVR. (valve replacement) There was no need to be jumping into surgeries my issues aren’t connected with. Therefore, it was set for the following week, November 11th. His office staff was awesome as always and did call me back to confirm the date, stating they didn’t want me to think they forgot about me. He already had a procedure scheduled that day and was getting a time slot special for me. (Spoilers- I was honored.) The “when” of that time wasn’t confirmed yet.
My IV was set up, and they shaved both wrists and hands for the chosen, and back up radial arterial access point. One nurse would get uncontrollable giggles looking at the difference between my smooth wrists and sasquatch like arms every time she came by for a blood pressure reading or to check on something pre or post procedure.
(Spoilers- Yes. Post procedure. Meaning I did survive.)
Then she would apologize and say, “At least it’s cold, you can wear long sleeves.” I didn’t have the heart to tell her I never wear long sleeves. But any source of comedy is worth it.
(Spoilers- “Perhaps I am nervous.”)
At that moment of extreme vulnerability, I was extremely thankful for all the knowledge I do have to give me confidence in this location and all who work there.
They noted that the other alternate insertion sites, for the femoral arteries (Spoilers- Yes… the groin.) had not been prepped (Spoilers-
Shaved.) when my wrists were done. He said the staff outside the lab leaves this preparation for them because of the
use of the recliners. I pointed out, “I was wondering what position I was
going to have to get into out there for that…” and before I finished, he said,
“But you figured it was better not to ask.”
Exactly.
He said they had more experience, and I
stated, “You all know what you’re doing, I trust you.”
His response, “Don’t worry, I watched a YouTube video how to do this last night.”
At that point my cardiologist, once more proving we have the same sense of humor, yelled from across the room, “SO DID I!”
They finished the other back up site preparation.
(Spoilers- The word “Mohawk” comes to mind.
“But you figured it was better not to ask.”
Exactly.
His response, “Don’t worry, I watched a YouTube video how to do this last night.”
At that point my cardiologist, once more proving we have the same sense of humor, yelled from across the room, “SO DID I!”
(Spoilers- The word “Mohawk” comes to mind.
“I pity the fool with a sharp and tortuous brachiocephalic entry angle.”
We now pause for the tiny cross over in the Venn Diagram of those who know vascular access procedures and those who know Eighties Pop Culture Trivia to compose themselves.)
One part of this I always forget is that
while the preparation statement is the same, “A little pinch,” the pain
involved with radial artery access is significantly above that for a venous IV
line. It could be the fact that I am learning about the functioning of my heart
shortly afterwards makes me forget this larger “little pinch.”
While I was awake and didn’t consciously
feel any different, I learned by asking at the end that I was given a sedative.
In the training she mentioned people falling asleep under that medication and not remembering anything, which
didn’t happen on my previous procedures. I asked if they changed it and she
said, “No,” but did note I wanted to be lightly sedated. Whether that was
communicated or it was just how I react to this type of sedation I have
no idea. (Spoilers- The fact that I didn’t undergo a complete panic attack at
any time indicates the sedation did its job well.)
Given that I couldn’t see the screen and
they weren’t talking directly to me, it was hard to tell what was going on from
moment to moment. Perhaps the sedative helped with that as well. At one point I
heard them discussing the correct pronunciation of “Calcified.” This is not a word one wants to hear when a
doctor is poking around your arteries. More evidence of the quality of the sedative
as I was remarkably calm about it. At another point he was talking to the
others in the room and yelled over to me, “Tell them how much you exercise.” To which
I answered, “I’ve been doing 35 minutes on the bike the nights I do my ankle exercises,
and an hour when I don’t.”
Doctor Safirstein said, “See?” Then went back to work.
Another good sign was him mentioning to them the need to bring my LDL way down because I needed to keep going to Disney every year. Nice to know he understands the critical goals.
When he finished up, he came over and
said something that (in hindsight) made me even more grateful for the sedative.
“There is good news and weird news.”
The good news- The left side looked almost the same as it did a dozen years ago. There were a couple tiny vessels
with some occlusion but they’re so small stenting them always closes up again, anyway.
The weird news- Above where I have my
two stents in the right coronary artery, there is a 100% occlusion. He
continued after telling me that before my mind and mouth could finish forming, “Why am I alive?” (Spoilers-
Thank you, sedative, for keeping me from leaping off the table.)
The way he explained it is my heart made its own bypass. The coronary arteries look like separate branches on each side, but really make a circuit. The left side and other arteries have gotten thicker, stronger, and larger, and the blood is now coming from other vessels including UP the right side from them (instead of the usual way DOWN the right side) and perfusing that area of the heart that way. Pushing through a complete occlusion of that size would require using a much stiffer and thicker guide wire to place anything, which has a far higher chance of complications. That is- the complication would be pushing through something that it shouldn’t be pushing through. (Spoilers- That something being a part of me.) My heart is getting the blood flow it needs, and my exercise tolerance remains high, therefore, there was no need to do anything in there.
We now pause for the tiny cross over in the Venn Diagram of those who know vascular access procedures and those who know Eighties Pop Culture Trivia to compose themselves.)
Doctor Safirstein said, “See?” Then went back to work.
Another good sign was him mentioning to them the need to bring my LDL way down because I needed to keep going to Disney every year. Nice to know he understands the critical goals.
The way he explained it is my heart made its own bypass. The coronary arteries look like separate branches on each side, but really make a circuit. The left side and other arteries have gotten thicker, stronger, and larger, and the blood is now coming from other vessels including UP the right side from them (instead of the usual way DOWN the right side) and perfusing that area of the heart that way. Pushing through a complete occlusion of that size would require using a much stiffer and thicker guide wire to place anything, which has a far higher chance of complications. That is- the complication would be pushing through something that it shouldn’t be pushing through. (Spoilers- That something being a part of me.) My heart is getting the blood flow it needs, and my exercise tolerance remains high, therefore, there was no need to do anything in there.
Was the muscle pull over my ribs in Disneyland really a heart attack?
(Spoilers- No.)
Is the calcium in my vitamins and the milk for my healthy cereal a cause of the occlusion solidifying?
(Spoilers- No.)
Was the fact that I had to sit down and take a break in the middle of doing hours and hours of yard work on a hot summer day an indication that this was happening?
(Spoilers- No.)
Was there anything on my older scans that, in hindsight could have predicted this?
(Spoilers- No.)
Was my not wanting to ride the Tower of Terror a second time first thing in the morning caused by a reduction in cardiac flow?
(Spoilers- No.)
Was there an interaction between medicines that I've been taking successfully for about a decade that reduced their efficacy?
(Spoilers- No.)
Was my eating more low sugar items to balance that issue out instead of focusing on low fat items a trigger for this?
(Spoilers- No.)
However, the only question I could voice in my sedated state was, “Did not being able to
exercise at all for five weeks do this?” referencing my separated ankle tendon.
(Spoilers- Also, no.)
The doctor said there was no way to know when it formed (other than after the five years ago scan) but the size and state of
the blockage meant there’s a good chance it was already there well before that time
period.
I did mention this incident while I was being prepped. I do not know whether that was the reason for the collagen plug this time, or (as always) medical technology and methods get better over time.
(Spoilers- I did not pass out, much to Rosa’s relief.)
(Spoilers- He did. Hurray!)
He also pointed out that if everything is working, "fully occluded" can actually be more stable than an open vessel. As an open vessel can close, but a fully occluded one is not going to change.
The pressure reduction steps for the TR
band worked perfectly this time, if you ignore the nurse giggling at the furry/
clean borderline on my arms. (Spoilers- Another side effect of aging, it is taking WAY longer for the hair to grow back than it did over a decade ago. "Quite the fashion choice.") I didn’t bleed or pass out. (Spoilers- These are excellent
metrics for a good day.) The band was removed by Three PM without incident. The plain
turkey sandwich and juice were exceedingly tasty because recovering from a two week
long anxiety attack always helps enhance the senses.
I couldn’t lift anything above ten
pounds for five days (Spoilers- The paper said three, but I trusted the the nurse to know what
she’s talking about. I do appreciate a good benefit risk analysis.) I had to keep the
packing tape (Spoilers- Probably not what it was.) on top of the little sponge (Spoilers- Also
probably not what it was.) covering the recently open access point to a main artery leading directly to my heart (Spoilers- EXACTLY what it was.) for a full twenty-four hours before showering.
There’s nothing like being in the
cardiac section of the hospital to make one feel grateful, and not just for the
amazing staff. Yes, I was freaked out about what I was going through, but I also heard another doctor say, “When I
went in, he was in full stroke.” I also heard a different doctor talking to the guy in
the next area (who was clearly way younger than me) about options for getting
on heart transplant lists. For these and many other reasons, I felt incredibly
lucky.
Rosa took me home. As always, infinite
thanx are due to her for taking care of me. Both before and after the procedure
was a chunk of fighting waves of anxiety. I have a pinched nerve in my neck which
manifests in radiating pain in my left arm, chest and back. Stretches alleviate
it and I usually can ignore it. Achieving that ignoring got a little harder
during this time.
(Spoilers- My Cardiologist's completely accurate medical assessment of this condition: "That sucks.")
The next day the sponge was reluctant to
come off with the packing tape, and I put a new band aid over it after showering. The next
night, while gingerly removing the band aid, the sponge popped off. I survived yet
another impromptu stress test and the plug remained in place.
(Spoilers- AAAAAAAAAAAAAAAAAAHHH!!!)
Over the next two days I rested, read
Spock’s Autobiography, a Veitch Swamp Thing collection, and finished the few
episodes I had left in season four of The Witcher. I’m not a huge fan of
binging television shows, therefore with Anabelle at school and Rosa out shopping
Thursday, even though I was multiple seasons behind on various series, I Watched Apocalypse Now.
(Spoilers- When else am I going to have
three hours to sit still alone, AND crank up the volume on the TV? "NEVER GET OUT OF THE BOAT, MAN!!!!!)
By Friday I was back at work remotely,
and either on the stationary bike or walking with Rosa each day. This came after calling the Cardiologist's office to ask when I could exercise, being told to wait nearly two weeks until I saw Doctor Safirstein, begging with the answering service to ask him instead...
(Spoilers- AAAAAAAAAAAAAAAAAAHHH!!!)
And then finding the discharge paper that said, "Resume normal activities immediately," about a day before he called me back.
(Spoilers- "Perhaps I am nervous.")
1) Nothing else gets blocked.
And
2) We get an inkling something is going on well before “100% occluded.”
"Twelve years between needing Cath Lab visits goes in the good column.
RCA completely occluded- didn’t die. Also in the good column."
However, what really happened was, “Due to all the actions I took and maintained for my health, when my crappy cardiac genetics led to a blockage, not only did I not die, but I continued with
unchanged quality of life.”
Due to those crappy cardiac
genetics, the blockage still happened with my cholesterol in the current
“acceptable" range. Therefore, I will be put on one of the new, injectable medications that drive the lipid profile WAY DOWN. The “acceptable” range border has
dropped already and is due to drop again. Additionally, high statistical powered studies
have shown no ill effects of extremely low cholesterol, and that these injectables
lead to reductions in both blockages and mortality rates. At this time I am
waiting to find out if the doctor's preferred medication will be covered. My Cardiologist filled out all the paperwork, and the pharmaceutical company sent me their "Coronary Artery Activity and Coloring Book" to guide me through the process. I'm still waiting, though, because someone with
no medical degree at an insurance company has to decide if it is financially
worth keeping me alive, and for how long. (Spoilers- Our healthcare system is SO broken. Sadly, much like several key problems, it is impossible for us in this nation to figure out what nearly every other civilized nation on Earth has to alleviate them.)
(Later Spoilers- I called our insurance help line to see if this could be expedited, was given a phone number for the section that handled that... and told I would be hung up on because I am not a provider. SO BROKEN!)
The main side effect of the new stuff is
the same as the statin I will continue taking, joint pain. Well, at this age, they all hurt all the
time anyway, so bring it on.
There is also a very slight chance of bronchitis, however:
A) I know how "side effects" in studies work. There were colds in both groups but a one percent higher occurrence in the test group compared to the control group. My suspicion is it has less to do with cause and effect, and more to do with what season the groups were checked.
B) That old risk benefit thing that guides every medical decision. If
the choice is a bad cough versus a heart attack, Shoot me up, Doc!
The key to any medical condition is to
do whatever you can to keep on going. This way, when you need a treatment everything has
gotten safer and more effective.
I’ll will keep fighting this with what I
eat, how hard I exercise and these old and new medications.
I will also keep following my
cardiologist’s advice on mental health along with physical.
When I said I had
been reducing caffeine but still needed some to function, especially on long
drives, he said that was fine.
When I said on weekend nights, I have a glass of rum and root beer while playing video games, he said, “I’m glad you do.”
When I said on weekend nights, I have a glass of rum and root beer while playing video games, he said, “I’m glad you do.”
(Spoilers- Technically, most of the time it is Rum and Birch Beer, but I am a fan of alliteration.)
And when I told him about cancelling the
Brazilian barbeque after getting the stress test results, he said, “What? No!
That place is the best. Did you go? You barely eat that stuff. You have to go.”
Some doctor’s orders are more fun to
follow than others!
(Spoilers- And now we get to share it with Anabelle!)
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